Hunter Patients

The HealthTalker Experience

Connecting Hunter Parents Through Conversation

Hunter Parents can benefit from connecting with others who understand what it means to live with Hunter syndrome. As one Hunter parent shared:

“It would be great to speak to someone who knows exactly what I’m going through. It will be a big help especially to those new to Hunter syndrome.”

The Hunter Parents community gives parents of children with Hunter syndrome a place to connect and find support online. As a HealthTalker, you can spread the word about Hunter syndrome, make a positive impact through conversation and connect with other parents like you!

Add Your Voice to the Community Today

MPS Awareness Day

MPS Society

Please join the the National MPS Society in recognizing International MPS Awareness Day on May 15, 2012. To mark the occasion, you can: Remember all the children and adults who suffer from MPS and related diseases. Think about the children we have lost. Think about the doctors and scientists who are dedicated to finding a cure for MPS and related diseases. Remember each other and be thankful for the strength and support we both give and receive.

Our Community

If you are a parent of someone with Hunter syndrome we welcome you to join the Hunter Parents community. This new community will give you the opportunity to connect with other parents of Hunter children, share your own story and find helpful advice in the experience of others. Add you voice to the conversation!