Hunter Syndrome in the News
FESTIVAL HELD TO BENEFIT LOCAL BOY WITH HUNTERS SYNDROME
7/17/2011 4:00:00 AM Source: -Hundreds of people gathered in Margate Sunday afternoon to support a local boy, diagnosed with an un-curable disease.
ZachFest to raise funds to help beat boy’s rare disease
7/13/2011 4:00:00 AM Source: -ZachFest to raise funds to help beat boy’s rare disease
The Children's Rare Disease Network Launches Valuable Informational Blog
6/8/2011 4:00:00 AM Source: -R.A.R.E. Blog is a Place for Families Affected by Rare Childhood Diseases to Learn and Share Resources.
Global Genes Project: World Rare Disease Day 2010, a tremendous success
3/8/2011 5:00:00 AM Source: -Global Genes Project Building International Network of Rare Disease Advocates Committed to Bringing Rare Disease into the Forefront Year-Round
Raise Your Hand to Help Millions of Americans Affected by Rare Diseases
2/7/2011 5:00:00 AM Source: -Today, Lundbeck announced its second annual Raise Your Hand to Fight Rare Diseases campaign in support of Rare Disease Day, a worldwide observance each year on February 28 to raise awareness of rare diseases.
7,000 Bracelets For Hope(TM) - A Rare Disease Awareness Campaign
11/1/2010 4:00:00 AM Source: -Global Genes Project Launches Blue Denim Inspired 'Cause Bracelets' To Be Distributed To Families Facing 7000 Different Types of Rare Diseases
Rare Disease Day: “Alone we are rare. Together we are strong.”
2/27/2010 5:00:00 AM Source: -On February 28, 2010, Rare Disease Day will be marked with a variety of events and activities all over the world - as well as with plenty of citizen media and online participation.
