Hunter Patients Newsletter – May 2012
Family Stories
Meet Cameron!
— Cameron was diagnosed with Hunter syndrome 16 years ago. Today, he is a student at Dalton State College in Georgia and spends time reading books, writing his blog, and leading a student group at his church. Cameron makes it a priority to help raise awareness about Hunter syndrome.
“Raising awareness of Hunter syndrome in Dalton is something that needs to be done,” Cameron said. “And if anyone should do it, I should.” So, in recognition of MPS Awareness Day on May 15, 2012, Cameron helped to educate high school students and teachers in the Dalton area about living with Hunter syndrome. He was asked to support MPS
Awareness Day at three Dalton high schools.
Visit the Family Stories Section to Read More About Cameron
MPS Awareness Day
Please join the the National MPS Society in recognizing International MPS Awareness Day on May 15, 2012. To mark the occasion, you can: Remember all the children and adults who suffer from MPS and related diseases. Think about the children we have lost. Think about the doctors and scientists who are dedicated to finding a cure for MPS and related diseases. Remember each other and be thankful for the strength and support we both give and receive.
Our Community
If you are a parent of someone with Hunter syndrome we welcome you to join the Hunter Parents community. This new community will give you the opportunity to connect with other parents of Hunter children, share your own story and find helpful advice in the experience of others. Add you voice to the conversation!
