Managing Hunter Syndrome

In managing Hunter syndrome, there are many ways to help enhance you or your child's well-being. One of these is finding the right specialist with experience treating children with special needs. Another is that palliative and symptomatic treatments can help relieve pain and enhance general health. Also, staying informed of medical progress can give you insights into the latest advances in managing Hunter syndrome. Many organizations provide general information and community and governmental support for families living with the disease.

Review the information in this section to learn more about managing Hunter syndrome.

OnePathSM Services

OnePathSM is a great resource if you have questions about Hunter syndrome or about navigating through prior authorizations or other insurance related matters. You may contact OnePathSM at 1-866-888-0660 and onepath@shire.com. Case managers are available to answer your call from 8:30am-8:00pm ET.

Related Links

Children Living with Inherited Metabolic Diseases- CLIMB

www.climb.org.uk

Information and advice for those, particularly children, affected by an inherited metabolic disease.

National MPS Society

www.mpssociety.org

The National MPS Society supports families and individuals affected by MPS and related diseases. They work to advance scientific research and increase public and professional awareness of MPS.

Online Resource for Americans with Disabilities

www.disabilityinfo.gov

Resources regarding employment, education, housing, transportation, income support, technology, and community support.