Newsletter

Our e-newsletter provides shared stories, news, events, and other topics of interest. Sign up so that you will be up-to-date on information about Hunter syndrome. If you are already a member of HunterPatients.com, you will automatically receive the newsletter, so no need to sign up again!

Sign Up for Updates

If you would like to unsubscribe from our Newsletter, email us to let us know.

June 2010 Newsletter

Meet Kyle:

Meet Kyle Plunkett, a 17 year old living in Massachusetts, as he chronicles his daily activities and describes living with Hunter syndrome.

MPS Cup:

On May 1, more than 100 people turned out to support the First Annual MPS Fantasy Hockey Game & Gala fundraiser for the MPS Society.

International MPS Awareness Day, 2010:

On May 15, we joined the National MPS Society to celebrate International MPS Awareness Day. MPS Families across the globe joined to raise awareness of MPS Disorders and to remember all the children and adults who suffer from MPS and related diseases.

Website Spotlight:

In April, the National MPS Society and the International MPS Network both launched new sites. The new sites have a fresh new look, with a lot of great new information. Take a look at MPSSociety.org and IMPSN.org

National MPS Society

www.mpssociety.org

The National MPS Society supports families and individuals affected by MPS and related diseases. They work to advance scientific research and increase public and professional awareness of MPS.

MPS ML Forum Dot Com

www.mpsforum.com

A worldwide connection for families of MPS and ML disorders

LSDSonline.com

www.lsdsonline.com

A support forum for families affected by lysosomal storage disorders