Newsletter Archives

October 2008 Newsletter

Hunter Patients in the News: Zachary Townsley (Miramar, FL)

In the Spotlight: Organizing "River Run for Ryan"- An Interview with Marie and Jonathan Hunt

Recent Event Highlights: 10th International Symposium on Mucopolysaccharide and Related Disorders

Community Voices: Laurel Radius, Chip and David’s Mom

June 2008 Newsletter

Hunter Patients in the News: Nick Melnyk and James Oliver

In the Spotlight: National MPS Awareness Day Highlights

Community Voices: Meet Nick and DiAngelo, two brothers with Hunter syndrome

Exceptional Parent Magazine

www.eparent.com/

Provides information, support, ideas, encouragement, and outreach for parents and families of children with disabilities, and the professionals who work with them