Hunter Patients in the News

On February 28, Shire HGT joined hundreds of patients organizations, government groups, medical societies and drug development companies worldwide to raise awareness on rare diseases, which affect nearly 30 million Americans and countless others worldwide.
Watch Shire HGT's Rare Disease Day video.

Hunter Family’s Home Gets a Miracle Makeover
The Lon family of Germantown, Maryland were the beneficiaries of a surprise home makeover courtesy of the Waterboyz for Jesus, a local community service group. Many of the improvements were designed to make the home more accessible for their son Christian, 13, who has Hunter Syndrome. The makeover was made possible by donations by local companies and community volunteers.
Read more about this inspirational story.

MPS Fundraiser Held in Long Beach, CA
In October the Long Beach community turned out for an MPS fundraiser and awareness-building event organized by Steve Chesser, whose son Bryce has Hunter Syndrome.

New at Hunterpatients

Managing Hunter Syndrome

Advocacy and Support

Learn about the Individual with Disabilities Education Act (IDEA)

The goal of IDEA is to ensure that children with disabilities have access to quality public education. Learn all about your rights under this law and how you can make the best use of the Individual Education Program (IEP) to ensure that your child has access to an appropriate and tailored education experience.
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Medical Progress

Patients & families needed for a new study on the social issues facing people with Hunter Syndrome

Researchers from the University of California, San Francisco and Pacific Graduate School of Psychology are planning a new study investigating the quality of life and other social issues facing MPS II patients of all ages. The goal is to gather information of daily behavior and the impact of the disease on family functioning. The study is open to MPS II patients of all ages and their immediate families.
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