Newsletter - June 2010

Kyle Plunkett

Meet Kyle

Meet Kyle Plunkett, a 17 year old living in Massachusetts, as he chronicles his daily activities and describes living with Hunter syndrome. Read about his hobbies, experiences and aspirations for the future. Kyle's blog will continue to be updated, so be sure to come back and visit!

Read Kyle's Blog

International MPS Awareness Day 2010

On May 15, we joined the National MPS Society to celebrate International MPS Awareness Day. MPS Families across the globe joined to raise awareness of MPS Disorders and to remember all the children and adults who suffer from MPS and related diseases. This year, thanks to the support and dedication from Senator Lindsey Graham (R-SC) and his staff, Senate Resolution 530 passed, that designated May 15, 2010 as National Awareness Day!

Each year on MPS Awareness Day we:

  • Remember all the children and adults who suffer from MPS and related diseases.
  • Think about the children we have lost.
  • Think about the doctors and scientists who are dedicated to finding a cure for MPS and related diseases.
  • Remember each other and be thankful for the strength and support we both give and receive.

You can send information about how you celebrated International MPS Awareness Day to the MPS Society.

Share your story

MPS Cup

On May 1, more than 100 people turned out to support the First Annual MPS Fantasy Hockey Game & Gala fundraiser for the MPS Society. Shire was a proud sponsor of the day's events, which were organized by MPS parents in Minnesota.

Learn More

In April, the National MPS Society and the International MPS Network both launched new sites. The new sites have a fresh new look, with a lot of great new information. Take a look at MPSSociety.org and IMPSN.org.