Newsletter - December 2009
Family Voices
Meet the Shermantine brothers...
Brad and Gifford Shermantine are two brothers living in Canton, Georgia. Read about their experiences, hobbies, involvement in the "Run for Erin" Race, and advice for others living with Hunter Syndrome.
Meet Brad and Gifford in Community Voices
Hunter Patients in the News
NIH Announces Expansion of Rare Diseases Clinical Research Network
The National Institutes of Health announced a second phase of the Rare Diseases Clinical Research Network (RDCRN) including funds for 19 research consortia. The Rare Diseases Clinical Research Consortia and a Data Management Coordinating Center (DMCC) will be awarded a total of just over $117 million over the next five years. The research conducted with the new funding will explore the natural history, epidemiology, diagnosis, and treatment of more than 95 rare diseases.
Read more.
Brave Community
In July, 2009 we launched BraveCommunity.com to a select group of people. We'd like to thank those of you who participated for your involvement and feedback on the initial site. We launched the new site last month with a new design and enhanced experience. For more information about Brave Community, please visit BraveCommunity.com