Privacy Policy
This site is owned by Shire Human Genetic Therapies, Inc., a business unit
of Shire Inc. This Online Privacy Policy is designed to tell you about our
practices regarding collection, use, and disclosure of information that you
may provide via this site. Please be sure to read this entire Online Privacy
Policy before using, or submitting information to, this site.
Your Consent
By using a Shire site, you signify your assent to the Shire Online Privacy
Policy. If you do not agree to this policy, please do not use our sites.
We reserve the right, at our discretion, to change, modify, add, or remove
portions of this policy at any time. Please check this page periodically
for changes. Your continued use of our sites following the posting of
changes to these terms will mean you accept those changes.
About Children
This site is not intended for children under the age of 13. We will not knowingly
collect information from site visitors in this age group. We encourage parents
to talk to their children about their use of the Internet and the information
they disclose to Web sites.
About This Site
In our effort to bring you up-to-date, accurate disease and resource information,
we use various expert sources and studies to develop site content. As a result,
you may find slight differences in statistics and/or percentages across various
articles-because different sources can view data differently. Shire is not engaged
in rendering medical or similar professional services or advice via this Web site.
If you desire or need such services or advice, you should consult a professional
health care provider.
Information We Collect and How We Collect It
Many of the services on our site are offered without our collecting any personally
identifiable information from you. You can visit our site and view most of the content anonymously.
The information we gather on our site falls into two categories: (1) personally
identifiable information you supply, and (2) aggregate information collected as
you navigate through our site.
Personally Identifiable Information Collection
Like many Web sites, this site actively collects information from its visitors
both by asking you specific questions and by permitting you to communicate
directly with us via e-mail, feedback forms, and/or chat rooms. Some of the
information that you submit may be personally identifiable information (that is,
information that can be uniquely identified with you, such as your full name,
address, e-mail address, phone number, and so on).
Some areas of this site may require you to submit demographic information in
order for you to benefit from the specialized features (such as receiving disease-related information, tips/pointers, etc.) or to participate in a particular activity. You will be informed at each information collection point what information is required and what information is optional.
Aggregate Information Collection
As you navigate through a Web site, certain information can be passively collected
(that is, gathered without your actively providing the information) using various
technologies and means, such as navigational data collection. This site may use Internet Protocol (IP) addresses. An IP Address is a number assigned to your computer by your Internet service provider so you can access the Internet and is generally considered to be non-personally identifiable information, because in most cases an IP address is dynamic (changing each time you connect to the Internet), rather than static (unique to the particular user's computer). We use your IP address to diagnose problems with our server, report aggregate information, determine the fastest route to your computer in connecting to our site, and administer and improve the site.
We also collect information about your use of our site through cookies and similar
technology. A "cookie" is a bit of information that a Web site sends to your computer that helps the site remember information about you and your preferences and recognize you as a return visitor to the site. Cookies, by themselves, do not tell us e-mail address or other personally identifiable information.
"Internet tags" (also known as single-pixel GIFs, clear GIFs, invisible GIFs,
and 1-by-1 GIFs) are smaller than cookies and tell the Web site server information
such as the IP address and browser type related to the visitor's computer.
This site may at times use Internet tags.
"Navigational data" ("log files," "server logs," and "clickstream" data) are
used for system management, to improve the content of the site, for market
research purposes, and to communicate information to visitors. This site may
at times use navigational data.
Use and Disclosure of Information
Except as otherwise stated, we may use your information to improve the content
of our site, to customize the site to your preferences, to communicate
information to you (if you have requested it), for our marketing and research
purposes, and for the purposes specified in this Online Privacy Policy. If you
provide personally identifiable information to this site, we may combine such
information with other actively and passively collected information.
We may disclose your personally identifiable information to our affiliates
worldwide that agree to treat it in accordance with this Online Privacy Policy.
In addition, we may disclose your personally identifiable information to third
parties located in the United States and/or any other country, but only (i) to
contractors we use to support our business (e.g., fulfillment services, technical
support, delivery services, and financial institutions), in which case we will
require such third parties to agree to treat it in accordance with this Online
Privacy Policy; (ii) in connection with the sale, assignment, or other transfer
of the business of this site to which the information relates, in which case we
will require any such buyer to agree to treat it in accordance with this Online
Privacy Policy; or (iii) where required by applicable laws, court orders, or
government regulations. In addition, we will make full use of all information
acquired through this site that is not in personally identifiable form.
Access and Correction
To keep your personally identifiable information accurate, current, and complete,
please contact us as specified below. We will take reasonable steps to update or
correct personally identifiable information in our possession that you have
previously submitted via this site.
Security
We take reasonable steps to protect your personally identifiable information
as you transmit your information from your computer to our site and to protect
such information from loss, misuse, unauthorized access, disclosure, alteration,
or destruction. You should keep in mind that no Internet transmission is ever 100%
secure or error-free. In particular, e-mail sent to or from this site may not be
secure, and you should therefore take special care in deciding what information
you send to us via e-mail. Moreover, where you use passwords, ID numbers, or other
special access features on this site, it is your responsibility to safeguard them.
Links to Other Web Sites
This site may contain links or references to Web sites. Please be aware that we
do not control other Web sites and that, in any case, this Online Privacy Policy
does not apply to those Web sites. We encourage you to read the privacy policy
of every Web site you visit.
How to Contact Us
If you have any questions, comments, or concerns about this Online Privacy
Policy or about the information practices of this site, or would like to
have your information removed from our files, please contact us as follows:
Shire Human Genetic Therapies, Inc.
Attn: Online Privacy Policy
700 Main Street
Cambridge, MA 02139
This policy was last revised June 17, 2009.