Community Voices

Connecting with others and sharing stories can be a powerful tool. Here, you’ll meet people with Hunter syndrome and their families. We hope you will gain information and inspiration from them. We also invite you to share your story, so that others may be inspired by you.

OnePathSM Services

OnePathSM is a great resource if you have questions about Hunter syndrome or about navigating through prior authorizations or other insurance related matters. For more information about OnePathSM, please visit OnePath.com or you may contact OnePathSM at 1-866-888-0660 and onepath@shire.com. Case managers are available to answer your call from 8:30am-8:00pm ET.

National MPS Society

www.mpssociety.org

The National MPS Society supports families and individuals affected by MPS and related diseases. They work to advance scientific research and increase public and professional awareness of MPS.

MPS ML Forum Dot Com

www.mpsforum.com

A worldwide connection for families of MPS and ML disorders

LSDSonline.com

www.lsdsonline.com

A support forum for families affected by lysosomal storage disorders