Family Voices
Nicholas (11 years old) and DiAngelo
(7 years old)
Nicholas (Nick) and DiAngelo are brothers who both have Hunter syndrome. At the age when most kids are gearing up for kindergarten, both boys were diagnosed with the disease. The family lived in a small town in New Mexico when the kids were younger, and they had to go to several doctors before they got a diagnosis. Due to the rarity of Hunter syndrome, it was difficult to find a physician who could manage Nick's Hunter syndrome. Eighteen months ago, Nick, DiAngelo and their family moved to California to be closer to the boys' physician.
Both Nick and DiAngelo enjoy attending school and are looking forward to starting summer school in June. Nick is in fourth grade and is a Cub Scout member. Besides school and Cub Scout activities, he likes to work on puzzles. According to his mom, Annette, Nick is a good organizer and is a big help at home to his mom and older sister. Even at the hospitals, he is well-known for helping to keep the library neat by arranging the books! DiAngelo is in first grade and like his older brother, is also a Cub Scout member. He loves animals and one of his favorite things to do is to watch the Animal Planet channel on television. Like a typical 7-year-old, DiAngelo's favorite toys are cars and trucks.