Pediatric surgeon

84% of patients with Hunter syndrome (MPS II) had undergone a surgical procedure.1

As a pediatric surgeon, you may be one of the first physicians to suspect Hunter syndrome (MPS II). In the Hunter Outcomes Survey (HOS), the majority of patients (56.8%) underwent at least one surgical intervention before diagnosis of MPS II.1

Median age of first operation

In the Hunter Outcome Survey (HOS), a multinational, observational database of 527 patients, nearly 84% of MPS II patients had undergone a surgical procedure.1

As a pediatric surgeon, you may be one of the first physicians to suspect MPS II, as the majority of patients (56.8%) underwent at least one surgical intervention before diagnosis of MPS II.1

HOS data also showed that the median age of first operation was 2.6 years. In young patients (under 3 years) the most commonly repeated surgical procedures were tympanostomy, tonsillectomy, adenoidectomy and hernia repair.1

Figure showing the age at which Hunter syndrome (MPS II) patients underwent various types of surgery

Adapted from Mendelsohn NJ, et al. Genet Med. 2010;12(12):816-822

Did you know?

  • In children, the most common cause of carpal tunnel syndrome is an underlying MPS disorder.1
  • Operable manifestations such as hernias and otitis media are among the first signs and symptoms to occur in patients with MPS II.1

Learn more: resources for pediatric surgeons

MATERIALS

Pediatric surgeon’s guide to Hunter syndrome

STAY INFORMED

YOUTUBE RESOURCES

Hunter syndrome YouTube channel

View an extensive list of clinical videos, webinars, and presentations

References:  1. Mendelsohn NJ et al. Genet Med 2010; 12(12): 816–822. 2. Burton BK, Giugliani R. Eur J Pediatr 2012; 171(4): 631–639.

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