Hunter Patients

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HunterPatients.com

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Explore HunterPatients.com

Here you can find useful information, including tips on managing Hunter syndrome and where to go to connect with others.

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From the Community

Teens

Kyle's Blog

A teen with Hunter syndrome shares his story with his video blog.
Read Kyle's Blog
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MPS Society

Featured Resource

The National MPS Society supports families and individuals affected by MPS and related diseases. They work to advance scientific research and increase public and professional awareness of MPS.
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Connect with the Hunter Parents Community

Parents

The Hunter Parents community presents a unique opportunity to connect with other Hunter Parents. Together, parents can empower each other by exchanging knowledge, insights and stories!

Welcome to HunterPatients!

Hunter syndrome, or mucopolysaccharidosis II (MPS II) is a serious genetic disorder that primarily affects males. Hunter syndrome is one of several related lysosomal storage diseases. It interferes with the body's ability to break down and recycle specific mucopolysaccharides (mew-ko-pol-ee-sak-ah-rides).

This website is for people with Hunter syndrome, their family and friends, and healthcare providers.

For Healthcare Providers

OnePath
Information specific to Healthcare Providers

Are you a Healthcare provider looking for more information about Hunter syndrome? Please visit our Healthcare Providers section for specialized information for different medical specialties. Read More

For Nurses

Information to educate nurses about Hunter syndrome

As a nurse or nurse practitioner (NP), you may be one of the first healthcare professionals to suspect signs and symptoms of Hunter syndrome. Learn more about how nurses can help with an early diagnosis of Hunter syndrome. Read More

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