As children with attenuated Hunter syndrome become older, their attention and activity level may improve, although issues such as low self-esteem may emerge as they become more self-aware and compare themselves with their peers.

Sports and other physical activities may be a key place where these feelings manifest, as there is a strong association between sports participation and self-image and psychological well-being, particularly among young adult males. There is a possible negative impact on self-image among students who are not skilled at sports, although their own belief in their ability seems to have a greater impact than their actual ability.

As these issues in young adult life likely stem from self-esteem and perceptions of the self, early intervention to promote self-esteem and a sense of competency may help. It is important to remind your child that support is available to them throughout all stages of their life as they grow into adults; there are other patients who have experienced how they are feeling and they may find it helpful to reach out to them or join relevant support networks.

Older Hunter syndrome patient with a book